A couple of important dates in the diary this week.

Thursday brings my six-monthly HIV appointment.

One of those regular dates that has become part of life’s routine. Bloods, conversations, results, and making sure everything continues to be as it should.

But this appointment has an additional question attached to it.

For quite some time, my HIV medication has been kept on a regimen that was considered compatible with a potential kidney transplant. Since making the decision to withdraw from the transplant pathway and accept long-term haemodialysis, I find myself wondering whether that treatment plan might now be reviewed.

Is there a different medication regime that might be more appropriate for my circumstances now? Or is staying on my current treatment still the best option?

It’s something I’ll be discussing with the consultant on Thursday. After all, treatment plans should reflect the reality of the life we’re living, not just the possibilities we once hoped for.

Living with HIV in 2026 is very different from what it was for previous generations. Treatment has transformed lives, and being undetectable means HIV doesn’t define my health, my relationships or my future. But I never take that for granted.

Then, on Saturday, I’m heading to the 8th National Conference for People Living with HIV, organised by the PN Network.

An opportunity to meet others, listen, share experiences and remember that although everyone’s journey with HIV is different, none of us should have to navigate it alone.

Two dates, two different but equally important aspects of living with HIV: looking after ourselves and standing alongside one another.

Six months at a time. One appointment at a time. And plenty of life in between.

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